Hello again and Happy Purple Day! Today is Epilepsy
Awareness Day around the world (in Canada it’s even a national Holiday!) I
always love Purple Day as it is a time to celebrate the people living with
epilepsy daily and raise awareness for the condition that I’ve been living with
for so long. I’ve never known life
without epilepsy but it’s so unknown, and yet it’s the fourth most common
neurological condition, affecting between 50-60 million people globally.
Because not many people know much about it, and it affects so many people, I
like to use Purple Day to try and make some noise!
The past year has been a bit of a bonkers one for me, not
because my epilepsy has changed all that much, but because of the way I have
seen how much my epilepsy impacts everyday life. I started this blog this year
focussing on my experiences living with epilepsy and it has forced me to sit
down and reflect on things I’ve never really thought about before. Writing
about my journey has been a cathartic experience for me and I can only hope
that what I have written about has been of some use to others as well. I think
over this year, I’ve noticed more and more, how many different aspects of life
epilepsy can filter into. (I wouldn’t have written so many blogs if this were
not the case!) But epilepsy can impact so much of your life in the same way
that your life impacts your epilepsy. Epilepsy is so much more than just seizures.
All the reflection and introspection of this past year, and
the lessons I’ve found myself learning from past experiences, has made me even
more passionate to raise as much awareness as I can about this condition I live
with. A few things in my life recently have really brought home to me just how
much more there is to epilepsy than just my experience, and it impacts so many
more people than we realise in so many ways. It is far more diverse than I
could have ever imagined as a child. I have been blessed to find a charity in
my area that has allowed me to meet more people with different experiences to
me, which is something I lacked growing up. But different people experience
seizures differently, recover differently (and at different rates), and find
different ways of navigating and coping with different areas of life. And while
epilepsy can mean such a complicated variety of things, it seems to me that everyone
who lives with it daily is just finding ways to get through it, cope with it, and if possible, try to thrive through it.
I can't thank you enough for sharing your thoughts and experiences Rachel! It's been so helpful to me getting an insight into your experiences living with epilepsy and thinking about how best I can help my daughter....... and I would have never know about purple day (which she loved). X
ReplyDeleteI can't thank you enough for sharing your thoughts and experiences Rachel! It's been so helpful to me getting an insight into your experiences living with epilepsy and thinking about how best I can help my daughter....... and I would have never know about purple day (which she loved). X
ReplyDeleteI can't thank you enough for sharing your thoughts and experiences Rachel! It's been so helpful to me getting an insight into your experiences living with epilepsy and thinking about how best I can help my daughter....... and I would have never know about purple day (which she loved). X
ReplyDeleteHappy purple day Rachel. I'm pleased to hear that writing and reflecting on how your epilepsy impacts your life has been a helpful experience for you. I'm sure others travelling a similar purple road will appreciate you taking the time to share your experiences.
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