Rescue Medications

-


I have had tonic-clonic seizures throughout my life.( Tonic clonic seizures | Epilepsy Society) I have been given medication to use if my seizure lasts longer than 2 minutes, administered by somebody else of course. Thankfully I haven’t needed this medication in years, but it’s still really important I have it, just in case!

Whilst I now understand the importance of keeping rescue meds on my person, I haven’t always been so understanding. I was nearly unable to go on a school trip because the school lacked someone able to administer the medication, if necessary. Nowadays I understand the need to be prepared & that situations can change quickly, but this was difficult to explain to 12 year-old me & if that’s why I was missing out on a trip, it didn’t go down well…( my mum was a LEGEND! She came up with magical solutions. My younger self didn’t realise how much she sacrificed for me.)

I can now appreciate the need to be ready for any situation. After 11 years more experience of life I can appreciate the uncertain nature of my condition a bit more & therefore the need to carry around my emergency meds. I know I can’t predict my seizures, but I’m as prepared as I can be.

Comments

Post a Comment

Popular posts from this blog

Happy Purple Day 2021!

-
Image
  Hello again and Happy Purple Day! Today is Epilepsy Awareness Day around the world (in Canada it’s even a national Holiday!) I always love Purple Day as it is a time to celebrate the people living with epilepsy daily and raise awareness for the condition that I’ve been living with for so long.   I’ve never known life without epilepsy but it’s so unknown, and yet it’s the fourth most common neurological condition, affecting between 50-60 million people globally. Because not many people know much about it, and it affects so many people, I like to use Purple Day to try and make some noise!   The past year has been a bit of a bonkers one for me, not because my epilepsy has changed all that much, but because of the way I have seen how much my epilepsy impacts everyday life. I started this blog this year focussing on my experiences living with epilepsy and it has forced me to sit down and reflect on things I’ve never really thought about before. Writing about my journey has...
Read more

Dealing with Myths and Misconceptions

-
Hi again! The support from my last two blogs was overwhelming and I just wanted to say a massive thank you to everyone who took the time to read them! Today I wanted to talk about my personal experience dealing with misconceptions and myths surrounding epilepsy. However, if anyone would be interested in a blog where I actually go through some commonly held misconceptions and myths, tell me in comments or drop me a message and I’ll try my hand at myth busting blog style in the future. There will always be people who make assumptions about epilepsy, and think they know everything they need to know. I know this isn’t everyone, but unfortunately it happens a lot. Thankfully most people are willing to listen.   I am so grateful for my Primary school who listened and worked with me and my family and never showed any kind of preconception when I arrived. The kids were great and just got used to me seizing in the playground, in class, and sometimes (embarrassingly) in assembly. Th...
Read more

My Experience of Epilepsy Medications

-
Hello again, lovely people! Today I'm talking about medication and the impact it can have. Medication can be a huge part of anyone's life. It isn't just epilepsy, however as it is something that pretty much everyone with epilepsy has to deal with, I thought I'd share my personal experiences on it. I'm currently on four medications for my epilepsy; Carbamazepine, Zonisamide, Clobazam, and Levetiracetam (if it seems like a lot that's because it is!). Managing four medications can be tricky and I've had a lot of experience with a variety of medications so I thought I'd share some of all that. If someone starts having seizures and is given a diagnosis of epilepsy, AED's (Anti-Epileptic Drugs) are nearly always the first treatment that is tried. Fortunately, roughly sixty percent of people's epilepsy can be completely controlled with AED’s. However, the process of finding the appropriate combination of medications can be a long and difficult one. Pe...
Read more