Doing Life in Lavender

  This is really comforting to have when I'm out and about independently, like my medical ID. Having a card that explains what my seizures might look like and how to respond to them if I'm found having one out in public is just another safety net that hopefully someone will find and be able to respond appropriately. This is especially reassuring as my seizures aren't typical to what is taught when you are taught about Epilepsy on first aid courses (my brother went to medical school and wasn't taught about seizures that looked like mine! I'm weird.) This card has what my seizures look like, how long they last for, as well as at what point to ring an ambulance. It also contains emergency contact information to get hold of my family. This combined with my medical ID creates a safety net for me when I go out by myself that even if something does happen, I have given the people around me as much information possible to try and help me in that situation.

  Hello again! This is me doing possibly one of the scariest things I have ever done. This is me on the balcony of a cathedral in Basel, Switzerland. After climbing a spiral staircase and some steps that were barely there anymore I made it here. And then I went back down after taking a photo to prove I had done it! This was a terrifying and triggering experience for me. I know that heights are a trigger for me. They have been since I fell off a sofa when I was very little. So it's no surprise that I became really twitchy halfway up, but unlike the Castle in Ukraine, there was no option to turn back around! When I got to the top, I was clinging to the walls for dear life in the hope that I managed to get back to the ground before I had a full convulsive seizure, which I just about did! And felt much better once my feet were back on solid ground! I learned that day to avoid my triggers rather than try and push them to the limits. I could feel how close I was to a convulsive seizure a...

  Hello everyone! This is another photo that there is a bit more to it than meets the eye. This was taken on holiday in Wales where a walk along the beach became a bit more complicated when I started twitching quite severely and thought I was close to a generalised seizure.  Heights have been a trigger for me since I was very young and I fell off of a sofa.This beach was at the bottom of a very steep hill and the height looking down over the beach was a trigger for me.  However, I didn't really recover when I got down onto solid ground, or even when I got back into the car like I thought I would. I struggled for the rest of the day, even later on when I was eating my dinner, I ended up sitting on the floor. Eating my dinner on the floor is a regular thing for me when I'm struggling, and I even do it nowadays when I'm feeling twitchy. It's a technique I use to feel safer and also I don't have to worry about the destruction of crockery if I do seize. I love this photo...