Doing Life in Lavender

  Hello again! This is me doing possibly one of the scariest things I have ever done. This is me on the balcony of a cathedral in Basel, Switzerland. After climbing a spiral staircase and some steps that were barely there anymore I made it here. And then I went back down after taking a photo to prove I had done it! This was a terrifying and triggering experience for me. I know that heights are a trigger for me. They have been since I fell off a sofa when I was very little. So it's no surprise that I became really twitchy halfway up, but unlike the Castle in Ukraine, there was no option to turn back around! When I got to the top, I was clinging to the walls for dear life in the hope that I managed to get back to the ground before I had a full convulsive seizure, which I just about did! And felt much better once my feet were back on solid ground! I learned that day to avoid my triggers rather than try and push them to the limits. I could feel how close I was to a convulsive seizure a...

  This, whilst not a photo I would normally have, is a film that has some significance to me. This is my go-to watch if I'm having a bad day, or when I was younger and I had clusters, I'd have 48 hours of Austen and this would always be the first thing I'd watch. I'd set up the floor with my duvet, pillows, blankets and giant stuffed creatures and set myself up for hours of seizing and watching Austen adaptations. This film would always be number one on the list! Michael wasn't keen to watch this with me (I was asking for ages!) but we struck a deal once my convulsive seizures were pretty much under control, that the next time I had a bad day he would have to watch this 6-hour classic with me! Turns out the next bad day I had was a few months later when I was admitted to hospital. One of the first things I asked to be brought to me in hospital was a laptop and this DVD. It's a classic book, I love this adaptation and it pretty much never fails to cheer me up. It...

  Hello everyone! This is another photo that there is a bit more to it than meets the eye. This was taken on holiday in Wales where a walk along the beach became a bit more complicated when I started twitching quite severely and thought I was close to a generalised seizure.  Heights have been a trigger for me since I was very young and I fell off of a sofa.This beach was at the bottom of a very steep hill and the height looking down over the beach was a trigger for me.  However, I didn't really recover when I got down onto solid ground, or even when I got back into the car like I thought I would. I struggled for the rest of the day, even later on when I was eating my dinner, I ended up sitting on the floor. Eating my dinner on the floor is a regular thing for me when I'm struggling, and I even do it nowadays when I'm feeling twitchy. It's a technique I use to feel safer and also I don't have to worry about the destruction of crockery if I do seize. I love this photo...

Hello again! So this looks like a lovely selfie with my mum and it is. It's one of the nicer ones if I do say so myself! This photo was taken a couple of days into our family holiday to Germany in February. What this photo isn't showing is that the night before and later on that evening I would be in tears, stressed about even a regular height bed, all of which resulted in me sleeping on the floor for a couple of nights. I'm pretty sure this seizure activity was triggered by 2 things. I had spent 12 hours, maybe more in a car the day before and I'm not sure what but that always leaves my brain feeling a bit funny. However, the biggest trigger for me was my brain struggling with the jumping of time zones and the effect that had on when I was taking my tablets. My body struggles to adjust to taking tablets at a different time and getting used to that takes a little while when I first go on holiday and on the way home as well. Sometimes it adjusts quite quickly and I barel...